evidencebased
WASHINGTON, D.C. – This week, U.S. Reps. Mike Kelly (R-PA-16), Congresswoman Doris Matsui (D-CA-07), Reps. Neal Dunn (R-FL-02), and Mike Thompson (D-CA-04), introduced the Providing Realistic Opportunity To Equal and Comparable Treatment for Rare (PROTECT Rare) Act. This legislation will support patients with rare and ultra-rare diseases in getting evidence-based, medically necessary care covered by their health insurance. Over 90% […]
WASHINGTON, D.C. – This week, U.S. Reps. Mike Kelly (R-PA-16), Congresswoman Doris Matsui (D-CA-07), Reps. Neal Dunn (R-FL-02), and Mike Thompson (D-CA-04), introduced the Providing Realistic Opportunity To Equal and Comparable Treatment for Rare (PROTECT Rare) Act. This legislation will support patients with rare and ultra-rare diseases in getting evidence-based, medically necessary care covered by their health insurance. Over 90% […]
By guest contributors Xanthe Hunta, Zara Trafforda, Prince Changolea, Ruth Useha & Tom Shakespeareb a Institute for Life Course Health Research, Department of Global Health, Stellenbosch University, South Africa b International Centre for Evidence in Disability, London School of Hygiene and Tropical Medicine, United Kingdom The dominant perception of disability as individual pathology has resulted […]
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